I've decided to move my blogs over to Quench Your Thirst With Alice Tea
I'll still be around since I am following a lot of you here.
Wednesday, October 24, 2012
Friday, October 19, 2012
Secrets My Pillow Keeps
my tears they flow
my tears they flow
my tears they flow
rolling rolling
down
and the liquid pain
stains
& deepens the shade of my pillow
it has tasted the essence
of my agony
time and time and time
before
yet remains the same
like an old friend
the one i can trust
to keep what is in
my Heart
a secret;
I will never tell
hush now
close your eyes
I will soak in
all that you wish to be rid of
so you can sleep
sleep sleep
a dreamless sleep
maybe tomorrow
maybe tomorrow
maybe tomorrow
you can share with me
joyful weepings
of freedom
freedom from sorrow
freedom from fear
freedom from all
that keeps your smile
sequestered
I wish this fabric possessed a voice
to tell you
throughout all these years
I've learned to decipher
those tears
I can see the Future
and what it holds
hush
close your eyes
and when you sleep
sleep
sleep the dreamless sleep
I can try to find a way
to whisper
to you
that one day
one day
one day
you will smile
no longer bound
and your tears will be
only a memory
only a memory
only a memory
stored safely away
within the woven threads
of me, your pillow
Original Poetry by Alice Tea
Ancient Memories
It was in another time and place
Because my heart remembers
Your soul as it first touched mine
Forever igniting the embers
Burning bright it sees the Future
To guide us back together to fulfill
Whatever was left unfinished
But do you remember me still?
Ponder upon its reflection
When you look into my eyes
Fall into me, fall into me
Perhaps then you will realize
You already know me
From ancient memories...
Original Poetry by Alice Tea
Wounds Run Deep
band aid smiles ripped off
revealing the flesh below
still raw and real
the wounds run deep
my mouth cannot voice
what my soul
longs to speak
tongue twisted and tied
bound by silent rules
written by the past
soul remains unconvinced
of that my mind believes
to be true
i confess to myself
i am not yet whole
or perhaps it is too much
to ask
accept me as i am
this vulnerable side
still too afraid
to say those words
i am but a coward
undecided
wavering
vacillating
wanting so much
asking for so little
will i let myself
experience the chance
to either fly or fall
is my strength
an illusion
can i afford to pay
the cost of the possibility
of a shattered heart
once again
Original Poetry by Alice Tea
Thursday, October 18, 2012
Points To Ponder - 1
Saying something like, "You're pretty... for being handicapped" is just as odd as saying, "You're really nice... for a white girl".
Beauty, being nice, or any other adjective for that matter, is not inclusive to a specific group of people.
Beauty, being nice, or any other adjective for that matter, is not inclusive to a specific group of people.
Wednesday, October 17, 2012
October is Spina Bifida Awareness Month
What is Spina Bifida?
Spina bifida is the most frequently occurring permanently disabling birth defect and the most common Neural Tube Defect. It affects approximately one out of every 1,000 newborns in the United States.
Spina bifida results from the failure of the spine to close properly during the first month of pregnancy. In severe cases, the spinal cord protrudes through the back and may be covered by skin or a thin membrane. Surgery to close a newborn's back is generally performed within 24 hours after birth to minimize the risk of infection and to preserve existing function in the spinal cord.
Because of the paralysis resulting from the damage to the spinal cord, people born with spina bifida may need surgeries and other extensive medical care. The condition can also cause bowel and bladder complications. A large percentage of children born with spina bifida also have hydrocephalus, the accumulation of fluid in the brain. Hydrocephalus is controlled by a surgical procedure called "shunting" which relieves the fluid build up in the brain by redirecting it into the abdominal area. Most children born with spina bifida live well into adulthood as a result of today's sophisticated medical techniques.
Who is at higher risk?
Women who:
- have a child with spina bifida
- have spina bifida themselves
- have already had a pregnancy affected by any neural defect
are at greater risk of having a child affected by spina bifida or another neural tube defect. These women may need to get a prescription for folic acid before trying to become pregnant, so it's important to plan any future pregnancy. Please speak with your health care provider about folic acid.
Do children with Spina Bifida have learning problems?
Some children with spina bifida do experience learning problems. They may have difficulty with paying attention, expressing or understanding language, organizing, sequencing and grasping reading and math.
How can we help with those learning problems?
Early intervention can help considerably to prepare these children for school. Students should be in the least restrictive environment and their day to day activities should be as "normal" as possible. It often helps to have a psychological evaluation, which tests the child's intelligence, academic levels (reading, spelling, math etc.), and basic learning abilities (visual perception, receptive and expressive language skills).
What about the physical limitations?
Children with spina bifida need to learn mobility skills, and often with the use of crutches, braces, or wheelchairs can achieve more independence. Also, with new techniques children can become independent in managing their bowel and bladder problems. Physical disabilities like spina bifida can have profound effects on the child's emotional and social development. It is important that health care professionals, teachers, and parents understand the child's physical capabilities and limitations. To promote personal growth, they should encourage children (within the limits of safety and health) to be independent, to participate in activities with their non-disabled peers and to assume responsibility for their own care.
What are secondary conditions associated with SB?
Special attention is needed to identify and treat secondary disabilities. Due to the wide range of neurological damage and mobility impairment it can be difficult to identify some secondary disabilities. Attention should be focused on the psychological and social development of children and young adults with spina bifida. Many recent studies, including the SBAA's Adult Network Survey, clearly indicate the presence of emotional problems that result from factors such as low self-esteem and lack of social skills training. Examples of secondary conditions associated with spina bifida are latex allergy, tendinitis, obesity, skin breakdown, gastrointestinal disorders, learning disabilities, attaining and retaining mobility, depression, and social and sexual issues.
What is latex allergy?
Allergic responses to latex (rubber) products. Typical symptoms include watery eyes, wheezing, hives, rash, swelling, and in severe cases, anaphylaxis (a life threatening reaction). These responses can occur when items containing latex touch the skin, the mucous membranes (like the mouth, genitals, bladder or rectum), open areas or bloodstream (especially during surgery).
Who is allergic to latex?
While it is not known exactly how this allergy develops, anybody can develop a latex allergy. However, certain groups of individuals have been identified as having a greater risk of becoming latex allergic. Those at higher risk include people who are frequently exposed to latex, such as children and adults with spina bifida and health professionals. Research has shown that spina bifida patients have the potential to become allergic (to some degree) to latex. Anyone with a latex allergy should avoid exposure to all products that contain latex.
What are some common products that contain latex?
Catheters, elastic bandages, baby bottle nipples, pacifiers and balloons are just a few common products that contain latex. If you are in doubt about a specific product, check with its distributor or manufacturer.
Can anything be done to prevent Spina Bifida?
Birth defects can happen in any family. Many things can affect a pregnancy, including family genes and things women may come in contact with during pregnancy. Recent studies have shown that folic acid is one factor that may reduce the risk of having an NTD baby.
Taking folic acid cannot guarantee having a healthy baby, but it can help. Taking folic acid before and during early pregnancy reduces the risk of spina bifida and other neural tube defects. Here's what you can do:
- Take a vitamin with 400 micrograms (mcg) folic acid every day.This amount is also written as 0.4 milligrams (mg). All women should take this amount every day while not planning to become pregnant.
- If you have a child with spina bifida, have spina bifida yourself, or have had a history of pregnancy affected by a neural tube defect, and you are thinking about becoming pregnant, you need a higher dose of folic acid. You should take 4000 micrograms (mcg) of folic acid by prescription for 1 to 3 months before becoming pregnant.This amount is also written as 4.0 milligrams (mg). Taking this amount of folic acid by prescription may reduce the chance of a neural tube defect like spina bifida in future pregnancies. Please see your doctor. Do not take this extra folic acid by taking more multivitamins because too much of some of the other vitamins could harm you and your future baby.
- Plan your next pregnancy.Speak with your health care provider about your personal risk of having a baby with a neural tube defect. You may need to get a prescription for folic acid before you try to become pregnant.
What is Folic Acid?
Folic acid, a common water-soluble B vitamin, is essential for the functioning of the human body. During periods of rapid growth, such as pregnancy and fetal development, the body's requirement for this vitamin increases. Folic acid can be found in multivitamins, fortified breakfast cereals, dark green leafy vegetables such as broccoli and spinach, egg yolks, and some fruits and fruit juices. However, the average American diet does not supply the recommended level of folic acid.
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